multiple sclerosis – The Sumaira Foundation

Storia NMO di Elena – Ciao Bella!

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Nel mese di marzo 2012 avevo appena trovato lavoro a più di 60 chilometri da casa ma era il lavoro per il quale avevo appena terminato gli studi ed ero […]

Jacqueline’s NMO Story – Scaling That Mountain

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. […]

Jason’s NMO Story – Advocacy and Awareness Saves Lives

Posted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO

Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]

Het verhaal van Els – Leven met een zeldzame ziekte, NMOSD

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Els is ambassadeur voor de Sumaira Foundation, die opkomt voor de belangen van mensen met NMOSD en MOGAD. Zelf kreeg ze begin 2022 de diagnose van NMOSD. Ik werd in […]

L’histoire NMO de Fatiha – Renaissance après NMO

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Bonjour à tous, je m’appelle Fatiha. J’habite à Étalleville en Normandie. Je suis tombée malade le 20 février 2016. Date anniversaire de la mort de mon père. Une double peine […]

Roxy’s Story – Denial, Disbelief, and Disability

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Hello fellow NMO sisters and brothers. My name is Roxana aka “Roxy”. I was diagnosed with NMO in June 2011 when I was 17 years old. The first symptom I […]

Isabella’s Story – A New Baby, a New Diagnosis, a New Life

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

While I was pregnant, I began having blurred vision. I went to see ophthalmologists, opticians, and general practitioners, but they kept saying nothing was wrong. I was sent to see […]

Iliana’s NMO Story – My NMO Diagnosis in Canada

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Part I and II of this story were originally published in 2015 by NMO Stories, presented by The Guthy-Jackson Foundation and the Connor B. Judge Foundation. It was shared again […]

Eliana’s NMO Story – My Blissful Tragedy

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

December of 2020 started perfectly. I recently accepted my first job offer after completing my undergraduate degree and anticipated my start date in the new year… In the second week […]