Proche-aidant.e
Posted by:
The Sumaira Foundation
in NMO, Proche-aidant.e, Voices of NMO, Voices of TSF
J’ai toujours été très proche de ma mère. Quand j’étais petite elle m’emmenait partout : au parc, à la mer, faire du shopping, aller chez des amis. Elle travaillait de nuit et le jour, elle s’occupait de mon frère et moi. Elle a toujours été très active et j’arrivais même à me demander où est-ce […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, Proche-aidant.e, Voices of NMO
Drogi Czytelniku – chciałabym podzielić się z Tobą naszą bardzo osobistą historią, która zmieniła życie moje i mojego męża. Bardzo bym chciała, żeby nasza historia była dla Ciebie przykładem nadziei i motywacji, abyś się nigdy nie poddał w poszukiwaniu ludzi, którzy będą mogli Ci pomóc i będę Twoim wsparciem. Bądź otwarty, pytaj i proś o […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Proche-aidant.e, Professionnels de santé, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly healthy and energetic. Then out of nowhere, she developed nausea and dizziness, which was thought to be a nonspecific virus, but when it persisted and […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Proche-aidant.e, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and my fiancé had been to the doctors multiple times and was turned away from the ER three separate times. She was told she had the […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, Proche-aidant.e, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took her to the ER, thinking she simply had a virus and needed some fluids… that’s when our world turned upside down. Jaidyn’s headaches were getting […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Proche-aidant.e, Voices of NMO
Jarrie grew up on a farm and declares himself a simple man. I think otherwise. I think Jarrie is a man for whom love is simply enough. Jarrie married his high school sweetheart, Donna, on Valentine’s Day in 1975. She died on New Year’s Day in 2021. Donna’s health began to deteriorate when she contracted […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Proche-aidant.e, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would change our lives forever… We had just finished a great weekend moving my oldest daughter, Estrella, into her dorm for her first year of college, […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, Proche-aidant.e, Voices of NMO
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is or why it happens, you feel frustrated. When this happens in the midst of your divorce, you wonder if the stress of the situation caused the problem. So you do your best. You encourage your […]
Read
More
Posted by:
The Sumaira Foundation
in Proche-aidant.e, TM, Voices of NMO
Addison “Addie” Havens was a healthy two year-old little girl full of energy and spunk who loved to play with her big brother… The weekend of January 29, 2016 began like any other but shortly after, Addie came down with a fever. We monitored it and were able to keep the fever down with Tylenol. […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, ON, Proche-aidant.e, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” The strange phenomenon went away in a few minutes. Her mother, Kimberlie, attributed the problem to Virginia’s allergies. But when the vision problem returned, they […]
Read
More
