Posted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Neuromyelitis Optica – a rare disease that appeared out of the blue and had a mission to suck the life out of my dear sister. At first we thought that it was Multiple Sclerosis, at least that’s what the doctors said. NMO was and still is a new phenomenon. This is why many, including my […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was 7 years old and after a normal school day, I noticed blurred vision in my left eye. As a very active and healthy child, this was unusual and so I went straight to my local opticians. Whilst there, I was told I had extreme inflammation in the back of my eye. They sent […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
It was mid-August. We were leaving Mass General Hospital. I’d been discharged after almost a week’s stay. I was just diagnosed with NMO. It was merely an acronym;the meaning hadn’t yet sunk in. I told my friend as we got into the car, “I’m not sure how yet, but somehow this has to become a good thing.” […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
It began like a pain unlike any other. In 2009, and during my sophomore year of college, I was sitting in class when the shooting pain down my back began. It was as if someone took hot metal spikes and drug it slowly down my spine. Terrified, I never told anyone what I was going […]
Read MorePosted by: The Sumaira Foundation in Media & Press
Local Woman Launches Nonprofit for Autoimmune Disease The Sumaira Foundation seeks to raise awareness of neuromyelitis optica, which affects the spinal cord and optic nerves. By Andrea Timpano | Hub Health | September 10, 2014 10:19 a.m. When 25-year-old Sumaira Ahmed was diagnosed with neuromyelitis optica (NMO), a rare autoimmune disease which affects the spinal […]
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