Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Bonjour, je m’appelle Natasha, j’ai 46 ans, et voici comment la NMOSD (neuromyélite optique) est entrée dans ma vie. Tout a commencé à l’été 2001. J’avais 23 ans et je […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Je m’appelle Nelly, j’ai 44 ans et je vis dans un joli village dans l’Oise et j’ai la MOGAD. Sans le savoir cette maladie m’avait déjà fait un petit clin […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
Året var 2007, och jag hade precis kommit tillbaka till skolan efter sommarlovet, tolv år gammal och taggad på att börja högstadiet med nya vänner och nya möjligheter! Terminen började […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Professionnels de santé, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
June 14, 2023 — The Sumaira Foundation (TSF), a global patient advocacy organization focused on rare neuroimmune conditions, is delighted to announce Tim Walbert, chairman, president and chief executive officer […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Nel mese di marzo 2012 avevo appena trovato lavoro a più di 60 chilometri da casa ma era il lavoro per il quale avevo appena terminato gli studi ed ero […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
On Monday, I woke up with a slight ache on the left side of my lower back which felt numb, like a bruise but without the pain. This numb spot […]
Read MorePosted by: The Sumaira Foundation in Media & Press, Nouvelles et annonces
“You have to grab life by the horns and enjoy every moment. Even if you’re not ill, you should do that!” April 7, 2023 — The Sumaira Foundation’s (TSF) first […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
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