Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Christy and I’ve been fighting this disease without knowing what I was up against since before 2008… I started calling this thing my “venom” because it reminded me of a venomous character that took over my entire being without letting go. My venom’s name is NMOSD (neuromyelitis optica spectrum disorder). It relentlessly […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
Tiffany was a military brat with both of her parents serving in the Navy, so joining up herself seemed the obvious choice for her. She enlisted in 2006 and met her husband on board a Navy ship in 2009. It was where she was meant to be. Tiffany was stationed in Suffolk, Virginia in January […]
Read MorePosted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look like therefore, some of my symptoms in the moment were overlooked and hard to tell what was actually happening! About 5 weeks after having my […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
I am no stranger to rare diseases. At 17, I was diagnosed with Toxoplasmosis. At 22, Phyllodes tumors. Chiari Malformation I at 26. It was not until 2017, when I received the diagnosis of neuromyelitis optica that my life was changed… In early 2014, I moved into a new desk at work. This new desk […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I was dealing with my husband’sunexpected open heart surgery and the passing of my mother… My body just wasn’t right; everything was off and out of […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We all lived together in our new home in Westwood. For the past seventeen years I worked for what is now called Eversource Electric, the largest […]
Read MorePosted by: The Sumaira Foundation in MOG, Proche-aidant.e, Voices of NMO
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is or why it happens, you feel frustrated. When this happens in the midst of your divorce, you wonder if the stress of the situation caused the problem. So you do your best. You encourage your […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
My name is Jaime. I live in the small town of Exeter, Pennsylvania. I am a wife and a mother to a beautiful and healthy 15 year-old daughter. And I have NMO. I’ve been paralyzed from my waist down three times. I’ve lost my eyesight due to multiple bouts of optic neuritis attacks that have […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
My biggest fear in life was that I would have some incurable sickness or disease. Not heights, nor spiders, nor public speaking. It was getting sick. Both of my parents had a myriad of physical and mental illnesses throughout my whole life, which seemed to be getting worse as the years went on. My mother […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
My name is Kellin. I am a 28-year-old South African NMO patient and this is my story… Late in 2015, my father suddenly passed away. It was a shock to my system and I was not prepared for it. In the months/years to follow, I experienced weird symptoms – which I now know were due […]
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