Posted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
Five years ago, my oldest daughter and I were grocery shopping when it occurred to me that the grocery store looked foggy or smokey. When I asked her if she thought it looked the same, she gave me a “you’ve lost your mind” look. By the next day, my vision was gone in the left […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
It was December 2019. I struggled almost every day with tension headaches (eyes and nose). My primary care doctor suspected I had migraines and prescribed me with migraine medication. I don’t like taking medication (never have) and stopped taking the pills after two days. I chose to fight the headaches… On Christmas Eve, I noticed […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Hello, my name is James. I am 24 years old. I am a recent college graduate, a skateboarder, a geek, a lucky dude with an amazing family and friends. If you don’t get the opportunity to let me bore you by telling you about those things, you could probably look at me and just assume […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
It was March 2009. I was 39 years old. One morning, I woke up feeling significant pressure behind my left eye. I felt it mostly in the right corner of my eye, but assumed it would go away as quickly as it came. After a day or two, I thought it could be a sinus […]
Read MorePosted by: The Sumaira Foundation in Proche-aidant.e, TM, Voices of NMO
Addison “Addie” Havens was a healthy two year-old little girl full of energy and spunk who loved to play with her big brother… The weekend of January 29, 2016 began like any other but shortly after, Addie came down with a fever. We monitored it and were able to keep the fever down with Tylenol. […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Proche-aidant.e, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” The strange phenomenon went away in a few minutes. Her mother, Kimberlie, attributed the problem to Virginia’s allergies. But when the vision problem returned, they […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
On December 25, 2018, we finally received answers and a diagnosis after Dominic became ill on November 19th with what we thought was a bug that was going around his school… He was taken to Children’s Hospital twice in one week because he wasn’t getting any better with his symptoms. A couple of days passed […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, my orthopedic surgeon had me on the surgery schedule assuming I needed a spinal fusion to fix a slipped disc. Then my MRI results came […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis optica (NMO) also known as Devic’s disease (similar to MS) last month after my MRI scans showed optic neuritis and brain lesions — and it’s completely shattered […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank goodness, your husband is in the car with you and takes over driving before you get into an accident. You assume something crazy happened and […]
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