Posted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Clean and clear were my glasses but still I had trouble seeing clearly with my right eye. On Easter Monday in 2019, my vision deteriorated and by the end of the week, I was admitted to the hospital. I was feeling sick with almost no vision left in both eyes, experiencing painful eye movements and […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Life was good in the spring of 2015; no, it was great! In 2012 I completed my master’s degree, which allowed me to change careers. I was leaving behind the demands of being a first responder. I enjoyed being a paramedic and loved working in law enforcement, but the truth was it had taken a […]
Read MorePosted by: The Sumaira Foundation in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything on the way home. She heard him crying, telling her that his mother, in Greece, had just been diagnosed with cancer. Instantly, she felt a […]
Read MorePosted by: The Sumaira Foundation in MOG, Proche-aidant.e, Voices of NMO
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is or why it happens, you feel frustrated. When this happens in the midst of your divorce, you wonder if the stress of the situation caused the problem. So you do your best. You encourage your […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, TM, Voices of NMO
Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever heard of NMO. But in 2007, shortly after Dr. Benjamin Greenberg joined the faculty at Johns Hopkins, he recruited her to work with him in neuroimmunology. It was there that she first came into contact […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Proche-aidant.e, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” The strange phenomenon went away in a few minutes. Her mother, Kimberlie, attributed the problem to Virginia’s allergies. But when the vision problem returned, they […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, my orthopedic surgeon had me on the surgery schedule assuming I needed a spinal fusion to fix a slipped disc. Then my MRI results came […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all start similarly, with an acute attack, out of the blue, and always marking the start of an unexpected turn in health. My story is different. […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Proche-aidant.e, Voices of NMO
Published May 1, 2019
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me and I have been very excited to see how much the field has changed over the past decade. I have been inspired by many patients […]
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