Posted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Sunday 15 December 2013, on a friend’s farm in the beautiful little town of Dullstroom in Mpumalanga South Africa, started as blissfully peaceful as it sounds. This was to change from around noon that day when I started experiencing severe headaches and bouts of dizziness. I initially thought it was hay fever or something like […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
It started with a never-ending headache… Click the image below to watch Chasity’s video in which she describes her experience with optic neuritis. Although she has lost a significant amount of vision, Chasity believes that everything happens for a reason and is grateful to still be able to see her children every day through her […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
I can trace my first NMO symptoms back to when I was just 12 years old… I’d be walking down a flight of stairs and for a split second, it was as if a switch had been thrown, cutting off communication between my brain and my legs and I’d fall down the stairs. Sometimes I’d […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Letitia and I am a 22-year-old South African NMO patient. My story began on the 26th of December 2017, Boxing Day… I had been suffering with an excruciating headache for the last 2 days. I eventually noticed that I also had trouble with my peripheral vision. After some online research, I came […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Hello, my name is James. I am 24 years old. I am a recent college graduate, a skateboarder, a geek, a lucky dude with an amazing family and friends. If you don’t get the opportunity to let me bore you by telling you about those things, you could probably look at me and just assume […]
Read MorePosted by: The Sumaira Foundation in Proche-aidant.e, TM, Voices of NMO
Addison “Addie” Havens was a healthy two year-old little girl full of energy and spunk who loved to play with her big brother… The weekend of January 29, 2016 began like any other but shortly after, Addie came down with a fever. We monitored it and were able to keep the fever down with Tylenol. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, obstructing the vision in my left eye turned into complete blindness in that eye in a matter of days. While admitted to Upstate University Hospital […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis optica (NMO) also known as Devic’s disease (similar to MS) last month after my MRI scans showed optic neuritis and brain lesions — and it’s completely shattered […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank goodness, your husband is in the car with you and takes over driving before you get into an accident. You assume something crazy happened and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later, […]
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