Posted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We all lived together in our new home in Westwood. For the past seventeen years I worked for what is now called Eversource Electric, the largest […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. Unlike most others, I was actually looking forward to turning the big 3-0! As the month went on, the […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
It was mid-August. We were leaving Mass General Hospital. I’d been discharged after almost a week’s stay. I was just diagnosed with NMO. It was merely an acronym;the meaning hadn’t yet sunk in. I told my friend as we got into the car, “I’m not sure how yet, but somehow this has to become a good thing.” […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
It began like a pain unlike any other. In 2009, and during my sophomore year of college, I was sitting in class when the shooting pain down my back began. It was as if someone took hot metal spikes and drug it slowly down my spine. Terrified, I never told anyone what I was going […]
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