Posted by: The Sumaira Foundation in NMO, Voices of NMO
Tiffany was a military brat with both of her parents serving in the Navy, so joining up herself seemed the obvious choice for her. She enlisted in 2006 and met her husband on board a Navy ship in 2009. It was where she was meant to be. Tiffany was stationed in Suffolk, Virginia in January […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Mary Lou Gallegos. I was born and raised in San Antonio, Texas. I am the co-owner/founder of SA Perks L.L.C Detox Juices and Tonics. I am the mother of four amazing children as well as a step daughter. In addition to that, I have four adorable grandchildren. I am a wife […]
Read MorePosted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look like therefore, some of my symptoms in the moment were overlooked and hard to tell what was actually happening! About 5 weeks after having my […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My first NMO symptoms hit three years ago when I was 9; I’m 12 now. To be fully transparent, I don’t actually fully remember that time very clearly. In January 2018, after having a blast skiing in Steamboat, Colorado with my family, I woke up with extreme fatigue, nausea, and dizziness. Previously, I was an […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would change our lives forever… We had just finished a great weekend moving my oldest daughter, Estrella, into her dorm for her first year of college, […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
I am no stranger to rare diseases. At 17, I was diagnosed with Toxoplasmosis. At 22, Phyllodes tumors. Chiari Malformation I at 26. It was not until 2017, when I received the diagnosis of neuromyelitis optica that my life was changed… In early 2014, I moved into a new desk at work. This new desk […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
The first time NMO hit me was on the evening before Thanksgiving in 2010… I clearly remember it because my wife and I were on holiday in the United States. While standing in the brightly lit Times Square in New York City with flashing lights coming from every angle, I had to cover my left […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The differential diagnosis: It is a skill we learn early in medical school and it is designed to guide the clinician on considering the possible underlying causes of a patient’s symptoms. A good differential diagnosis includes possibilities of each category: neurologic, cardiac, hematologic, infectious, etc. We are taught that the best physicians approach a patient’s […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign Our #IYKYK NMO campaign will last all month long! Be part of the campaign by downloading and sharing our custom media assets on your social […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I was dealing with my husband’sunexpected open heart surgery and the passing of my mother… My body just wasn’t right; everything was off and out of […]
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