Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
February 1st, 2011 – I began having vision problems in my left eye and a few days later, it got drastically worse. I went to the Mass Eye and Ear Infirmary’s ER and was diagnosed with Optic Neuritis. With time, it got a little better but by the end of February, my legs started feeling tingly, numb, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I have never been a person that likes to sit still; I don’t even like going to the movies. If it was up to me, I would run from location to location so that I can get there faster. I was a runner in high school, in college and I have completed 4 marathons, qualifying […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My life changed eleven years ago when I was diagnosed with NMO. To this day, I still have moments where I reflect back on my story and feel every ounce of emotion I felt during my diagnosis. However, over time, I have been able to adapt to my so-called normalcy after being an active teenager […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. Unlike most others, I was actually looking forward to turning the big 3-0! As the month went on, the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Proche-aidant.e, Voices of NMO
ADELAIDE Her mother, dying on the bed next to her, asked Adelaide for a sip of water. As Adelaide moved to get up, the left side of her body felt numb. She managed to rise, but as she and her sisters went to lift their mother’s head, Adelaide dropped it back. What the heck was going […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before but, here it goes… In 2004, about six weeks after giving birth to my son, I developed my first symptom. One morning, I woke up […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was in the midst of a very busy semester of in college, so I considered it to be a symptom of long hours of studying, hundreds […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
In early November 2000, Nick came down with viral symptoms. He was just done eating dinner when he vomited across the kitchen – I was shocked. Up to this point he was a healthy 23 month old who was active, talking and above average in his skills and was never sick a day in his […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Neuromyelitis Optica – a rare disease that appeared out of the blue and had a mission to suck the life out of my dear sister. At first we thought that it was Multiple Sclerosis, at least that’s what the doctors said. NMO was and still is a new phenomenon. This is why many, including my […]
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