Posted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been knocked down, again and again, and has always picked herself back up. She is one strong woman. As a mother and grandmother, Julie knows that […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica on July 25, 2015. My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier. I had a fever and began to have pain in my hands. Over the course of the next few days, my […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Liz has had NMO for 25 years now. She’s only known it for ten… Since she’d had migraines throughout her childhood, Liz and her mother didn’t think too much of it when, at age 11, the “migraine” around her left eye was so bad that she thought she needed glasses. But obligingly, her mother […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
My name is Brian Weinshenker and I am a neurologist at the Mayo Clinic in Rochester, MN. I established a career as an MS specialist and have had an interest in conditions that mimic MS and issues relating to the accuracy of MS diagnosis. Neurologists have no specific tests for MS; a diagnosis is established […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015. When she returned home, her shoulders and arms burned, but strangely, had not changed color. The burning sensation lasted for months. Lillian was in severe pain, and felt as if her body […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Neuromyelitis Optica – a rare disease that appeared out of the blue and had a mission to suck the life out of my dear sister. At first we thought that it was Multiple Sclerosis, at least that’s what the doctors said. NMO was and still is a new phenomenon. This is why many, including my […]
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