Posted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Chelsey Judge, PhD, is a scientist with a particular interest in immunology. She also happen to be the sister of an NMO patient. Chelsey shares her Voices of NMO™ story from the perspective of a scientist, sibling, and scientific advisor to one of TSF for NMO’s partners, The Connor B. Judge Foundation, based in Cleveland, […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Proche-aidant.e, Voices of NMO
Published May 1, 2019
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
While 2018 came ringing in with optimism, I was back in school getting my business degree and making moves to start a daycare center for children with special needs. I was working long hours with a successful home daycare that allowed me to be an active parent with my children at home. I had a […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Before I begin, I would like to thank you and tell you how much I appreciate you taking the time to read about my journey with neuromyelitis optica. Prior to embarking on this journey, I was a normal, healthy, active child. I enjoyed reading, swimming, skating, skateboarding, bicycling, playing tennis, and riding horses. I enjoyed […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease mostly mistaken as MS or Multiple Sclerosis, same symptoms but different treatments to manage it. I’ve been diagnosed since July 31, 2018, which commonly known […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me and I have been very excited to see how much the field has changed over the past decade. I have been inspired by many patients […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel ill. I was throwing up uncontrollably. It started with just a few times a day, and suddenly I was throwing up or dry heaving 12 […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I had a colonoscopy because I was losing weight, bowels had blood and mucus coming out. After that, I start having a tingling in my thighs […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Hello! My name is Joyce and I am from Pittsburgh, Pennsylvania. My NMO symptoms started with loss of bladder control, stress inconvenience, irritable bowel with constipation, and sensation loss in my legs and arms. I also experienced severe migraines. Some of my migraines for last for days. I would see spots, have blurred vision, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror and having other people cook for me. My dream life was to be a pianist, a teacher, get married, travel, have children, be the fun […]
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