Posted by: The Sumaira Foundation in NMO, Voices of NMO
My first NMO symptoms hit three years ago when I was 9; I’m 12 now. To be fully transparent, I don’t actually fully remember that time very clearly. In January 2018, after having a blast skiing in Steamboat, Colorado with my family, I woke up with extreme fatigue, nausea, and dizziness. Previously, I was an […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would change our lives forever… We had just finished a great weekend moving my oldest daughter, Estrella, into her dorm for her first year of college, […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
I am no stranger to rare diseases. At 17, I was diagnosed with Toxoplasmosis. At 22, Phyllodes tumors. Chiari Malformation I at 26. It was not until 2017, when I received the diagnosis of neuromyelitis optica that my life was changed… In early 2014, I moved into a new desk at work. This new desk […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
The first time NMO hit me was on the evening before Thanksgiving in 2010… I clearly remember it because my wife and I were on holiday in the United States. While standing in the brightly lit Times Square in New York City with flashing lights coming from every angle, I had to cover my left […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The differential diagnosis: It is a skill we learn early in medical school and it is designed to guide the clinician on considering the possible underlying causes of a patient’s symptoms. A good differential diagnosis includes possibilities of each category: neurologic, cardiac, hematologic, infectious, etc. We are taught that the best physicians approach a patient’s […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign Our #IYKYK NMO campaign will last all month long! Be part of the campaign by downloading and sharing our custom media assets on your social […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I was dealing with my husband’sunexpected open heart surgery and the passing of my mother… My body just wasn’t right; everything was off and out of […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
Nicole was a first-grade teacher and chorus director in a Title 1, low-income school district, where she was a beloved, appreciated, and award-winning professional… In May of 2017, Nicole thought she had pink eye, got antibiotics, and went to school. On a Friday, she taught, directed a chorus concert, and saw her mother later in […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We all lived together in our new home in Westwood. For the past seventeen years I worked for what is now called Eversource Electric, the largest […]
Read MorePosted by: The Sumaira Foundation in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything on the way home. She heard him crying, telling her that his mother, in Greece, had just been diagnosed with cancer. Instantly, she felt a […]
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