Posted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
My name is Mitchel Navarro. I’m 34 years old, a wife, and a proud momma to two beautiful children – a girl and a boy. I have a bachelors degree in elementary education and was a teacher when this journey began. My days would begin at 5 AM and I’d finally be able to crawl […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Sunday 15 December 2013, on a friend’s farm in the beautiful little town of Dullstroom in Mpumalanga South Africa, started as blissfully peaceful as it sounds. This was to change from around noon that day when I started experiencing severe headaches and bouts of dizziness. I initially thought it was hay fever or something like […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Letitia and I am a 22-year-old South African NMO patient. My story began on the 26th of December 2017, Boxing Day… I had been suffering with an excruciating headache for the last 2 days. I eventually noticed that I also had trouble with my peripheral vision. After some online research, I came […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
It was March 2009. I was 39 years old. One morning, I woke up feeling significant pressure behind my left eye. I felt it mostly in the right corner of my eye, but assumed it would go away as quickly as it came. After a day or two, I thought it could be a sinus […]
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It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, my orthopedic surgeon had me on the surgery schedule assuming I needed a spinal fusion to fix a slipped disc. Then my MRI results came […]
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I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis optica (NMO) also known as Devic’s disease (similar to MS) last month after my MRI scans showed optic neuritis and brain lesions — and it’s completely shattered […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at 4:30 am most mornings and meet my running buddies for a six mile run. On Saturday’s, we would do our long runs which were 13-21 […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Proche-aidant.e, Voices of NMO
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made fun of because I am THAT parent. You know, the one that takes their kids to the doctor for anything and everything. I thank God […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later, […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me and I have been very excited to see how much the field has changed over the past decade. I have been inspired by many patients […]
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