Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I have never been a person that likes to sit still; I don’t even like going to the movies. If it was up to me, I would run from location to location so that I can get there faster. I was a runner in high school, in college and I have completed 4 marathons, qualifying […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My life changed eleven years ago when I was diagnosed with NMO. To this day, I still have moments where I reflect back on my story and feel every ounce of emotion I felt during my diagnosis. However, over time, I have been able to adapt to my so-called normalcy after being an active teenager […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. Unlike most others, I was actually looking forward to turning the big 3-0! As the month went on, the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Proche-aidant.e, Voices of NMO
ADELAIDE Her mother, dying on the bed next to her, asked Adelaide for a sip of water. As Adelaide moved to get up, the left side of her body felt numb. She managed to rise, but as she and her sisters went to lift their mother’s head, Adelaide dropped it back. What the heck was going […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before but, here it goes… In 2004, about six weeks after giving birth to my son, I developed my first symptom. One morning, I woke up […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was in the midst of a very busy semester of in college, so I considered it to be a symptom of long hours of studying, hundreds […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was 7 years old and after a normal school day, I noticed blurred vision in my left eye. As a very active and healthy child, this was unusual and so I went straight to my local opticians. Whilst there, I was told I had extreme inflammation in the back of my eye. They sent […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
It began like a pain unlike any other. In 2009, and during my sophomore year of college, I was sitting in class when the shooting pain down my back began. It was as if someone took hot metal spikes and drug it slowly down my spine. Terrified, I never told anyone what I was going […]
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