Posted by: The Sumaira Foundation in MOG, Proche-aidant.e, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took her to the ER, thinking she simply had a virus and needed some fluids… that’s when our world turned upside down. Jaidyn’s headaches were getting […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Clean and clear were my glasses but still I had trouble seeing clearly with my right eye. On Easter Monday in 2019, my vision deteriorated and by the end of the week, I was admitted to the hospital. I was feeling sick with almost no vision left in both eyes, experiencing painful eye movements and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
A native Portuguese speaker and resident of Denmark, Leda wrote her story in English, Portuguese, and Danish. Please scroll down to read Leda’s story in Portuguese and/or Danish. In 2018 my life was peaking. My family was doing well. I had the most amazing job and spent my spare time teaching Zumba classes, boxing, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Part I and II of this story were originally published in 2015 by NMO Stories, presented by The Guthy-Jackson Foundation and the Connor B. Judge Foundation. It was shared again on November 14th, 2019 in In Their Own Words by SRNA (Siegel Rare Neuroimmune Association). Part I Sometimes I think I could write a book about my story with NMO… […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Pauline Richardson nee Grant. I grew up on a farm in Jamaica. My mom, being a cheerful giver, would invite people over all the time, always making sure they were well fed. My parents instilled in us strong values, the importance of family, faith, and community. My parents’ caring and compassionate attitude […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Uncategorized, Voices of NMO
The bad news is that apparently I’m about to die. The good news is that both my fantasy doctor boyfriend and my ex-husband are at my bedside for this moment… I’m in the hospital with a collection of mysterious and life-threatening symptoms. My heart monitor is beeping at a speed that seems un-survivable and I […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Life was good in the spring of 2015; no, it was great! In 2012 I completed my master’s degree, which allowed me to change careers. I was leaving behind the demands of being a first responder. I enjoyed being a paramedic and loved working in law enforcement, but the truth was it had taken a […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
December of 2020 started perfectly. I recently accepted my first job offer after completing my undergraduate degree and anticipated my start date in the new year… In the second week of the month, I fell ill to what I thought was the stomach flu. I was soon rushed to the hospital after extreme nausea refused […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Hali and I am a 19 year old Scottish Law student living with NMOSD. — It all began in August 2021 when I developed a rash on the left side of my neck. It caused extreme nerve pain in the brain when touched the area and would trigger shaking spasms. I then […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Born and raised in Tokyo, Mamiko Sakaida always loved singing and wanted to become an opera singer. In pursuit of her making her dreams come true, she studied opera in Bologna, Italy, where she trained with the best of the best in her industry. Mamiko’s life suddenly and drastically changed in 2016 when she became paralyzed from […]
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