Posted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been knocked down, again and again, and has always picked herself back up. She is one strong woman. As a mother and grandmother, Julie knows that […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Liz has had NMO for 25 years now. She’s only known it for ten… Since she’d had migraines throughout her childhood, Liz and her mother didn’t think too much of it when, at age 11, the “migraine” around her left eye was so bad that she thought she needed glasses. But obligingly, her mother […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned this to my sister as it was odd I could see around this shape. There was a little soreness and my eye was slightly itchy. […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed the hard work was causing the strange sensation. The tightness, like a band around her body, lasted for a few days. Ann went to the […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Recently, Ria’s mother’s blood pressure climbed dangerously high. Her father is scheduled for a triple bypass later this week. It’s been an unusual few months for a woman who has been on the other side of the hospital bed more frequently than not for the last five years. Ria has risen to the occasion. Because […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. At the time I had just embarked on a new semester in law school. Everyone around me thought it was just law school stress. The […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, wisdom, and incredible strength. Be inspired with the video below! Megan’s story marks our 20th Voices of NMO story and the 1st video submission. To […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
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