Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. At the time I had just embarked on a new semester in law school. Everyone around me thought it was just law school stress. The […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her NMO journey, what/who inspires her, and words of encouragement! Published July 14, 2017
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015. When she returned home, her shoulders and arms burned, but strangely, had not changed color. The burning sensation lasted for months. Lillian was in severe pain, and felt as if her body […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
With respect to the patient’s desire to remain anonymous, we will refer to him as Matt. It started along with a very bad cold in late 2011. Eye pain and some vision loss. Matt went to an ophthalmologist and felt scared, for the first time, watching the concern suddenly grow in the doctor’s eyes as she […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
I was an on-call intern late one night at the Johns Hopkins Hospital when I met a young woman who presented with weakness and pain in her legs. This was her third admission to the hospital in the past 6 months despite her doctor’s best effort to treat her for multiple sclerosis (MS). “I don’t […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
February 1st, 2011 – I began having vision problems in my left eye and a few days later, it got drastically worse. I went to the Mass Eye and Ear Infirmary’s ER and was diagnosed with Optic Neuritis. With time, it got a little better but by the end of February, my legs started feeling tingly, numb, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. Unlike most others, I was actually looking forward to turning the big 3-0! As the month went on, the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was in the midst of a very busy semester of in college, so I considered it to be a symptom of long hours of studying, hundreds […]
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