Posted by: The Sumaira Foundation in NMO, Voices of NMO
My first NMO symptoms hit three years ago when I was 9; I’m 12 now. To be fully transparent, I don’t actually fully remember that time very clearly. In January 2018, after having a blast skiing in Steamboat, Colorado with my family, I woke up with extreme fatigue, nausea, and dizziness. Previously, I was an […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would change our lives forever… We had just finished a great weekend moving my oldest daughter, Estrella, into her dorm for her first year of college, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The differential diagnosis: It is a skill we learn early in medical school and it is designed to guide the clinician on considering the possible underlying causes of a patient’s symptoms. A good differential diagnosis includes possibilities of each category: neurologic, cardiac, hematologic, infectious, etc. We are taught that the best physicians approach a patient’s […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign Our #IYKYK NMO campaign will last all month long! Be part of the campaign by downloading and sharing our custom media assets on your social […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I was dealing with my husband’sunexpected open heart surgery and the passing of my mother… My body just wasn’t right; everything was off and out of […]
Read MorePosted by: The Sumaira Foundation in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything on the way home. She heard him crying, telling her that his mother, in Greece, had just been diagnosed with cancer. Instantly, she felt a […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
On the evening of Sunday, 17th January 2010, my mother was putting up a fight with my brothers and I to go to bed while we were chasing each other through the house. We had school the next day; I was 12 years old at the time. At 4am the next morning, I woke up […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
My name is AnneMarie and my journey with NMO began in 2002 when I was just 16 years old… One April morning, I woke up with a stabbing pain in my lumbar spine which was getting progressively worse. My mom rushed me to the local emergency room where they had taken x-rays and done bloodwork. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
My biggest fear in life was that I would have some incurable sickness or disease. Not heights, nor spiders, nor public speaking. It was getting sick. Both of my parents had a myriad of physical and mental illnesses throughout my whole life, which seemed to be getting worse as the years went on. My mother […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Today this is where I am – right here and right now. God has a plan, yesterday is gone and tomorrow may never be – It’s up to me as to how I make the best of it. Much, much more of the story of “NMO & Me” to unfold, as Dr. Will Meador, one […]
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