Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. When I would bend my head to look down, it would cause electrical vibrations down my body. My balance and coordination were completely off… I […]
Read MorePosted by: The Sumaira Foundation in Media & Press, Nouvelles et annonces
“You have to grab life by the horns and enjoy every moment. Even if you’re not ill, you should do that!” April 7, 2023 — The Sumaira Foundation’s (TSF) first original short film NMO, Bonjour! has been selected into the official final shortlist at the World Health Organization’s 4th Health for All Film Festival, 2023. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”，重新出发去寻找生命意义的故事。现在，他期待着NMO病友大会在中国举办，期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路，直到医学领域发现治愈的光芒，直到病友们能摆脱疾病带来的痛苦，直到NMO和MOG病友们都能重新拾起对世界的热爱…
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Every day we wake up, we surely never expect our day to end with everything turned upside down – and our life changed forever. But it is exactly what happened to me in 2013 after being diagnosed with an autoimmune condition that could likely leave me blind, paralyzed, or worse… “You have ten years,” the […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
November 22, 2021 – The Sumaira Foundation is pleased to welcome Professor Romain Marignier as the 1st international NMO specialist to join TSF’s medical advisory board. Romain Marignier, MD Pr. Romain Marignier is a neurologist (MD), professor at the Neurological Hospital of Lyon, France. His areas of expertise include neuro-inflammatory disorders of the central nervous […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
Tiffany was a military brat with both of her parents serving in the Navy, so joining up herself seemed the obvious choice for her. She enlisted in 2006 and met her husband on board a Navy ship in 2009. It was where she was meant to be. Tiffany was stationed in Suffolk, Virginia in January […]
Read MorePosted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look like therefore, some of my symptoms in the moment were overlooked and hard to tell what was actually happening! About 5 weeks after having my […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
On the evening of Sunday, 17th January 2010, my mother was putting up a fight with my brothers and I to go to bed while we were chasing each other through the house. We had school the next day; I was 12 years old at the time. At 4am the next morning, I woke up […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
My biggest fear in life was that I would have some incurable sickness or disease. Not heights, nor spiders, nor public speaking. It was getting sick. Both of my parents had a myriad of physical and mental illnesses throughout my whole life, which seemed to be getting worse as the years went on. My mother […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, TM, Voices of NMO
Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever heard of NMO. But in 2007, shortly after Dr. Benjamin Greenberg joined the faculty at Johns Hopkins, he recruited her to work with him in neuroimmunology. It was there that she first came into contact […]
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