Posted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look like therefore, some of my symptoms in the moment were overlooked and hard to tell what was actually happening! About 5 weeks after having my […]
Read MorePosted by: The Sumaira Foundation in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything on the way home. She heard him crying, telling her that his mother, in Greece, had just been diagnosed with cancer. Instantly, she felt a […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
It was December 2019. I struggled almost every day with tension headaches (eyes and nose). My primary care doctor suspected I had migraines and prescribed me with migraine medication. I don’t like taking medication (never have) and stopped taking the pills after two days. I chose to fight the headaches… On Christmas Eve, I noticed […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, obstructing the vision in my left eye turned into complete blindness in that eye in a matter of days. While admitted to Upstate University Hospital […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned this to my sister as it was odd I could see around this shape. There was a little soreness and my eye was slightly itchy. […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed the hard work was causing the strange sensation. The tightness, like a band around her body, lasted for a few days. Ann went to the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. At the time I had just embarked on a new semester in law school. Everyone around me thought it was just law school stress. The […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her NMO journey, what/who inspires her, and words of encouragement! Published July 14, 2017
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015. When she returned home, her shoulders and arms burned, but strangely, had not changed color. The burning sensation lasted for months. Lillian was in severe pain, and felt as if her body […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
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