Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Bonjour à tous, je m’appelle Fatiha. J’habite à Étalleville en Normandie. Je suis tombée malade le 20 février 2016. Date anniversaire de la mort de mon père. Une double peine pour moi. Mon premier symptôme: une paralysie du côté gauche. J’ai été hospitalisée et mon état s’est dégradé très vite. J’ai perdu la vue, j’ai […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Le 6 octobre 2014, le jour où ma vie a pris une nouvelle voie pour poursuivre son chemin. Le jour où j’ai commencé une cohabitation avec une maladie rare… À cette date, à 36 ans, la partie supérieure de mon œil gauche commence à voir de façon embrouillée. Six jours plus tard, mon œil ne […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Hello fellow NMO sisters and brothers. My name is Roxana aka “Roxy”. I was diagnosed with NMO in June 2011 when I was 17 years old. The first symptom I experienced was weakness in my right ankle. I woke up one day and my ankle couldn’t sustain my weight. I thought I hadn’t slept well […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Bonjour à tous, je m’appelle Elodie. J’ai prochainement 37 ans. J’habite à Orp-Jauche, Brabant wallon, Belgique. En 2008, j’ai fait ma première poussée. Une nevrite optique. A l’époque, j’avais été aux urgences ophtalmologiques dans un grand hôpital à Bruxelles. L’ophtalmologue sur place m’a parlé directement d’une sclérose en plaques. Diagnostic qui n’avait pas été confirmé […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
It was over a decade ago, but I remember it like yesterday, the first patient I looked after with NMOSD. Actually, there were two of them in the same neuroimmunology clinic. Both patients had a profound effect on me and have continued to influence other decisions I have made in my career since that time. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was born and raised in Cuba where I played outside, ran, and enjoyed time with my friends. In my healthy teen years, I didn’t think I’d ever become chronically sick, much less, stop walking. I remember watching a movie about a boy named Lorenzo who suffered from a degenerative neurological disease that causes paralysis. […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Every day we wake up, we surely never expect our day to end with everything turned upside down – and our life changed forever. But it is exactly what happened to me in 2013 after being diagnosed with an autoimmune condition that could likely leave me blind, paralyzed, or worse… “You have ten years,” the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
While I was pregnant, I began having blurred vision. I went to see ophthalmologists, opticians, and general practitioners, but they kept saying nothing was wrong. I was sent to see a neurologist at a public hospital, but there were long wait times. Knowing I needed answers, I chose to go to a private hospital. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Hi, my name is Noelani. I am 30 years old, was born and raised in Hawaii but currently reside in Nevada! Looking back, there were signs throughout my childhood of NMO, bowel/urinary incontinence, spurts of tingles, and needles in my extremities. In my early teens, I had episodes of numbness in my left arm and […]
Read MorePosted by: The Sumaira Foundation in MOG, Proche-aidant.e, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took her to the ER, thinking she simply had a virus and needed some fluids… that’s when our world turned upside down. Jaidyn’s headaches were getting […]
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