Patient.e
Posted by:
The Sumaira Foundation
in MOG, Patient.e, Voices of NMO
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all start similarly, with an acute attack, out of the blue, and always marking the start of an unexpected turn in health. My story is different. […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later, […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
She thought it might be her fault. After all, she was working 14-hour days driving a truck, going to school full time and caring for a young son on her own… In 2008, Maurita suffered a bad stomach virus, but she worked and studied through it. Almost a year later, it happened again, virulently enough […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
April Fools’ Day jokes are supposed to be funny. However, the one my parents thought I was playing two years ago, was most definitely not. I’m not pulling your leg either when I tell you, on April 1, 2016, I woke up completely blind in my left eye. Let me pause for a moment and […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient.e, Voices of NMO
In February 2019, I received an NMOSD diagnosis after nearly 11 years of being treated for multiple sclerosis… I think when you are diagnosed with a chronic disease, knowing who you are is critical to how you move forward with living the life you want to live. With certainty, I can say that I live […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Is it unreasonable to call a woman who comes down with a rare autoimmune disease lucky? What about two autoimmune diseases? It may seem strange, but Eleanor considers herself lucky. With her children still in high school, her elderly parents needing her care and working a full- time teaching job, Eleanor didn’t have much time […]
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Posted by:
The Sumaira Foundation
in MOG, Patient.e, Proche-aidant.e, Voices of NMO
Published May 1, 2019
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, TM, Voices of NMO
While 2018 came ringing in with optimism, I was back in school getting my business degree and making moves to start a daycare center for children with special needs. I was working long hours with a successful home daycare that allowed me to be an active parent with my children at home. I had a […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Before I begin, I would like to thank you and tell you how much I appreciate you taking the time to read about my journey with neuromyelitis optica. Prior to embarking on this journey, I was a normal, healthy, active child. I enjoyed reading, swimming, skating, skateboarding, bicycling, playing tennis, and riding horses. I enjoyed […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
According to all of his medical tests, Greg is negative for both multiple sclerosis (MS) and neuromyelitis optica (NMO). Like many people misdiagnosed due to similar symptoms, Greg was considered an MS patient and treated for years by self-injecting the interferon, Rebif. His symptoms were on-and-off numbness in his limbs… His relapses were successfully treated […]
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