Posted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
On a warm February evening at the University of Miami, I sat in my Music Business lecture and wondered from where this strange soreness had come. There was a lingering discomfort each time I moved my left eye from side to side or up and down. My eyes had never been an issue and this […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
I was an on-call intern late one night at the Johns Hopkins Hospital when I met a young woman who presented with weakness and pain in her legs. This was her third admission to the hospital in the past 6 months despite her doctor’s best effort to treat her for multiple sclerosis (MS). “I don’t […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Something Wasn’t Right I was the perfect example of the shiny student off to bigger and better things from the small country town where I grew up. I had a very bright future ahead of me. It was my last year of high school, and I was cramming in as many courses into my workload […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
February 1st, 2011 – I began having vision problems in my left eye and a few days later, it got drastically worse. I went to the Mass Eye and Ear Infirmary’s ER and was diagnosed with Optic Neuritis. With time, it got a little better but by the end of February, my legs started feeling tingly, numb, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I have never been a person that likes to sit still; I don’t even like going to the movies. If it was up to me, I would run from location to location so that I can get there faster. I was a runner in high school, in college and I have completed 4 marathons, qualifying […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My life changed eleven years ago when I was diagnosed with NMO. To this day, I still have moments where I reflect back on my story and feel every ounce of emotion I felt during my diagnosis. However, over time, I have been able to adapt to my so-called normalcy after being an active teenager […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, she was far too busy to pay attention. Adria was working full time as a paralegal and going to law school in the evenings. The […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise I took for my 30th birthday. Unlike most others, I was actually looking forward to turning the big 3-0! As the month went on, the […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Proche-aidant.e, Voices of NMO
ADELAIDE Her mother, dying on the bed next to her, asked Adelaide for a sip of water. As Adelaide moved to get up, the left side of her body felt numb. She managed to rise, but as she and her sisters went to lift their mother’s head, Adelaide dropped it back. What the heck was going […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before but, here it goes… In 2004, about six weeks after giving birth to my son, I developed my first symptom. One morning, I woke up […]
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