Posted by: The Sumaira Foundation in Patient.e, TM, Voices of NMO
My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year of pursuing an MBA (Masters of Business Administration) at Pioneer Institute of Professional Studies (PIPS) in Indore when it all happened. In August 2010, I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Recently, Ria’s mother’s blood pressure climbed dangerously high. Her father is scheduled for a triple bypass later this week. It’s been an unusual few months for a woman who has been on the other side of the hospital bed more frequently than not for the last five years. Ria has risen to the occasion. Because […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. At the time I had just embarked on a new semester in law school. Everyone around me thought it was just law school stress. The […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her NMO journey, what/who inspires her, and words of encouragement! Published July 14, 2017
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, wisdom, and incredible strength. Be inspired with the video below! Megan’s story marks our 20th Voices of NMO story and the 1st video submission. To […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015. When she returned home, her shoulders and arms burned, but strangely, had not changed color. The burning sensation lasted for months. Lillian was in severe pain, and felt as if her body […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with NMO on March 10, 2015… An MRI that was done while I was receiving inpatient care for sudden paralysis of my lower limbs showed a spinal lesion on vertebrae C4 through C6… After all the unanswered questions, frustration, doctors appointments, blood work, imaging, crying, and terrifying Google searches, I finally had […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good job and we were looking for our first home to purchase with our two young sons. Things could not have been any better…. Adam’s story […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
With respect to the patient’s desire to remain anonymous, we will refer to him as Matt. It started along with a very bad cold in late 2011. Eye pain and some vision loss. Matt went to an ophthalmologist and felt scared, for the first time, watching the concern suddenly grow in the doctor’s eyes as she […]
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