Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
April Fools’ Day jokes are supposed to be funny. However, the one my parents thought I was playing two years ago, was most definitely not. I’m not pulling your leg either when I tell you, on April 1, 2016, I woke up completely blind in my left eye. Let me pause for a moment and […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
In February 2019, I received an NMOSD diagnosis after nearly 11 years of being treated for multiple sclerosis… I think when you are diagnosed with a chronic disease, knowing who you are is critical to how you move forward with living the life you want to live. With certainty, I can say that I live […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Is it unreasonable to call a woman who comes down with a rare autoimmune disease lucky? What about two autoimmune diseases? It may seem strange, but Eleanor considers herself lucky. With her children still in high school, her elderly parents needing her care and working a full- time teaching job, Eleanor didn’t have much time […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Proche-aidant.e, Voices of NMO
Published May 1, 2019
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
While 2018 came ringing in with optimism, I was back in school getting my business degree and making moves to start a daycare center for children with special needs. I was working long hours with a successful home daycare that allowed me to be an active parent with my children at home. I had a […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Before I begin, I would like to thank you and tell you how much I appreciate you taking the time to read about my journey with neuromyelitis optica. Prior to embarking on this journey, I was a normal, healthy, active child. I enjoyed reading, swimming, skating, skateboarding, bicycling, playing tennis, and riding horses. I enjoyed […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
According to all of his medical tests, Greg is negative for both multiple sclerosis (MS) and neuromyelitis optica (NMO). Like many people misdiagnosed due to similar symptoms, Greg was considered an MS patient and treated for years by self-injecting the interferon, Rebif. His symptoms were on-and-off numbness in his limbs… His relapses were successfully treated […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease mostly mistaken as MS or Multiple Sclerosis, same symptoms but different treatments to manage it. I’ve been diagnosed since July 31, 2018, which commonly known […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me and I have been very excited to see how much the field has changed over the past decade. I have been inspired by many patients […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel ill. I was throwing up uncontrollably. It started with just a few times a day, and suddenly I was throwing up or dry heaving 12 […]
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