Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Sherry. My experience with my disease is a little different and backwards… I was taking care of my father who had MS for many years and experienced sporadic health issues but never at the same time. I began to notice that these issues were becoming increasingly worse, with more signs and symptoms […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried to do it a third time, I trained right up to walking 50km in a day however, I was suddenly unable to sleep, to stay […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. The urgent care team told me that I had a urinary tract infection and sent me home with a prescription for it. Two days later, […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
This is a story of how a warrior is made. I have been gifted with the job of being this warrior’s mother and I am proud to share her story. This is the story of a smart, beautiful, strong, athletic, healthy 12 year-old who suddenly was thrown into battle – a battle with fear, unknowns, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
She thought it might be her fault. After all, she was working 14-hour days driving a truck, going to school full time and caring for a young son on her own… In 2008, Maurita suffered a bad stomach virus, but she worked and studied through it. Almost a year later, it happened again, virulently enough […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Chelsey Judge, PhD, is a scientist with a particular interest in immunology. She also happen to be the sister of an NMO patient. Chelsey shares her Voices of NMO™ story from the perspective of a scientist, sibling, and scientific advisor to one of TSF for NMO’s partners, The Connor B. Judge Foundation, based in Cleveland, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
April Fools’ Day jokes are supposed to be funny. However, the one my parents thought I was playing two years ago, was most definitely not. I’m not pulling your leg either when I tell you, on April 1, 2016, I woke up completely blind in my left eye. Let me pause for a moment and […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
In February 2019, I received an NMOSD diagnosis after nearly 11 years of being treated for multiple sclerosis… I think when you are diagnosed with a chronic disease, knowing who you are is critical to how you move forward with living the life you want to live. With certainty, I can say that I live […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Is it unreasonable to call a woman who comes down with a rare autoimmune disease lucky? What about two autoimmune diseases? It may seem strange, but Eleanor considers herself lucky. With her children still in high school, her elderly parents needing her care and working a full- time teaching job, Eleanor didn’t have much time […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
While 2018 came ringing in with optimism, I was back in school getting my business degree and making moves to start a daycare center for children with special needs. I was working long hours with a successful home daycare that allowed me to be an active parent with my children at home. I had a […]
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