Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
According to all of his medical tests, Greg is negative for both multiple sclerosis (MS) and neuromyelitis optica (NMO). Like many people misdiagnosed due to similar symptoms, Greg was considered an MS patient and treated for years by self-injecting the interferon, Rebif. His symptoms were on-and-off numbness in his limbs… His relapses were successfully treated […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease mostly mistaken as MS or Multiple Sclerosis, same symptoms but different treatments to manage it. I’ve been diagnosed since July 31, 2018, which commonly known […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me and I have been very excited to see how much the field has changed over the past decade. I have been inspired by many patients […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I had a colonoscopy because I was losing weight, bowels had blood and mucus coming out. After that, I start having a tingling in my thighs […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Hello! My name is Joyce and I am from Pittsburgh, Pennsylvania. My NMO symptoms started with loss of bladder control, stress inconvenience, irritable bowel with constipation, and sensation loss in my legs and arms. I also experienced severe migraines. Some of my migraines for last for days. I would see spots, have blurred vision, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror and having other people cook for me. My dream life was to be a pianist, a teacher, get married, travel, have children, be the fun […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable. In addition, when she turned her eyes right and left, she experienced eye pain. She took some ibuprofin, and went to the office, where she worked as a dental hygienist. On Friday, Pam had an existing appointment […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Nothing can fell Marie. No matter the punches that NMO throws, Marie just gets up again and keeps on going. A strong young woman who has learned to live with blindness and many years in a wheelchair, Marie, now 26, has been living with NMO since the age of 14. Like for so many young […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
This disease began with hiccups and vomiting 25+ times a day. I was certain that I had gotten food poisoning or had the flu. Later, I learned that things would get much worse before they got better. I could no longer work because it was difficult for me to even get out of bed. After […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
My entire life, I was always a healthy and energetic person… I have played tons of sports and never went to the doctor unless it was for a sports physical. I found joy in all of life’s beauties but I really fell in love with running. I joined as a sophomore and not only did I […]
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