Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Hello! My name is Joyce and I am from Pittsburgh, Pennsylvania. My NMO symptoms started with loss of bladder control, stress inconvenience, irritable bowel with constipation, and sensation loss in my legs and arms. I also experienced severe migraines. Some of my migraines for last for days. I would see spots, have blurred vision, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror and having other people cook for me. My dream life was to be a pianist, a teacher, get married, travel, have children, be the fun […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable. In addition, when she turned her eyes right and left, she experienced eye pain. She took some ibuprofin, and went to the office, where she worked as a dental hygienist. On Friday, Pam had an existing appointment […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a second child. After the birth, though, she was put on Rituximab for the lymphoma, once a week for four weeks. Two years later, one night […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
My entire life, I was always a healthy and energetic person… I have played tons of sports and never went to the doctor unless it was for a sports physical. I found joy in all of life’s beauties but I really fell in love with running. I joined as a sophomore and not only did I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation for NMO and Miss Bangladesh-USA 2015. Thank you for taking the time to read my story. It all started in June 2014. I was a perfectly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica on July 25, 2015. My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier. I had a fever and began to have pain in my hands. Over the course of the next few days, my […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]
Read MorePosted by: The Sumaira Foundation in Patient.e, TM, Voices of NMO
My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year of pursuing an MBA (Masters of Business Administration) at Pioneer Institute of Professional Studies (PIPS) in Indore when it all happened. In August 2010, I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Recently, Ria’s mother’s blood pressure climbed dangerously high. Her father is scheduled for a triple bypass later this week. It’s been an unusual few months for a woman who has been on the other side of the hospital bed more frequently than not for the last five years. Ria has risen to the occasion. Because […]
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