Tag: chronic illness

Dr. Weinshenker’s Story – Witnessing the Transformation of Neuromyelitis Optica

Posted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO

My name is Brian Weinshenker and I am a neurologist at the Mayo Clinic in Rochester, MN. I established a career as an MS specialist and have had an interest in conditions that mimic MS and issues relating to the accuracy of MS diagnosis. Neurologists have no specific tests for MS; a diagnosis is established […]

Ann’s NMO Story – Not Letting NMO Stop Her

Posted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO

Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed the hard work was causing the strange sensation. The tightness, like a band around her body, lasted for a few days. Ann went to the […]

Jeanette’s NMO Story – Surviving Since Birth

Posted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO

My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]

Ria’s NMO Story – Stronger Than You Know Fighting NMO

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Recently, Ria’s mother’s blood pressure climbed dangerously high. Her father is scheduled for a triple bypass later this week. It’s been an unusual few months for a woman who has been on the other side of the hospital bed more frequently than not for the last five years. Ria has risen to the occasion. Because […]

Daniele’s NMO Story – MENINA CORAGEM (Courageous Girl)

Posted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO

I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from my chest down… My first symptoms, during August and September of 2011, were nausea and vomiting. Nowadays, I know that those are very peculiar characteristics […]

Kia’s NMO Story – Deciphering my Diagnosis

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. At the time I had just embarked on a new semester in law school. Everyone around me thought it was just law school stress. The […]

Megan’s NMO Story – Coping via Cosmetics