boston – The Sumaira Foundation

NMO Awareness Month with TSF!

Posted by: The Sumaira Foundation in Nouvelles et annonces

Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign […]

Ryan’s NMO Story – NMO is my New Normal

Posted by: The Sumaira Foundation in NMO, Voices of NMO

My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We […]

Theresa’s NMO Story – Facing One Day at a Time…

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank […]

Catherine’s NMO Story – Life Is My Marathon

Posted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO

Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at […]

Dr. Farrah Mateen’s Story – A Global Perspective on NMO

Posted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO

Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me […]

Sumaira’s NMO Story (from The Transverse Myelitis Association Blog – In Their Own Words”)

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation […]

Phil’s NMO Story – A Journey to a Diagnosis

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

Here is my story of how I was diagnosed with Neuromyelitis Optica and just how scary it can be knowing that something is wrong but not being able to find […]

Dr. Tracey Cho’s NMO Story – Teaching Future Neurologists That NMOSD is a “Do Not Miss” Diagnosis

Posted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO

My name is Tracey Cho. I am a neurologist and a teacher. I specialize in autoimmune and infectious neurology, treating diseases like NMO, NMDA receptor encephalitis, HSV encephalitis, chronic meningitis, […]

Deanna’s NMO Story – Choosing Resilience

Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO

February 1st, 2011 – I began having vision problems in my left eye and a few days later, it got drastically worse. I went to the Mass Eye and Ear Infirmary’s […]