Patient.e
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The Sumaira Foundation
in NMO, Patient.e, TM, Voices of NMO
Paula is a walking miracle. She looks good, feels good and can do most everything she ever did in her life, though she is now eligible for senior discounts. Paula has NMO. Lupus. Hashimoto’s Disease. Sjogren’s Syndrome. Raynaud’s Syndrome. Postural Orthostatic Tachycardia Syndrome (POTS). Fibromyalgia. When she was just 15, Paula was diagnosed with Idiopathic thrombocytopenic […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Meet the happy workaholic, Kelly Ann, an ambitious business + LinkedIn coach, podcaster and luxury brand consultant from California who candidly shares the ups and downs of her NMO story and the importance of dedicating your time and energy towards saving your own life. To learn more about Kelly Ann, visit www.kellyanngorman.com
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient.e, TM, Voices of NMO
Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been knocked down, again and again, and has always picked herself back up. She is one strong woman. As a mother and grandmother, Julie knows that […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica on July 25, 2015. My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier. I had a fever and began to have pain in my hands. Over the course of the next few days, my […]
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Posted by:
The Sumaira Foundation
in MOG, Patient.e, Voices of NMO
Liz has had NMO for 25 years now. She’s only known it for ten… Since she’d had migraines throughout her childhood, Liz and her mother didn’t think too much of it when, at age 11, the “migraine” around her left eye was so bad that she thought she needed glasses. But obligingly, her mother […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned this to my sister as it was odd I could see around this shape. There was a little soreness and my eye was slightly itchy. […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient.e, Voices of NMO
Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging. Ann noticed a tightness in and around her chest, but assumed the hard work was causing the strange sensation. The tightness, like a band around her body, lasted for a few days. Ann went to the […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient.e, TM, Voices of NMO
My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses including Lupus, Rheumatoid Arthritis, Fibromyalgia, Sjogrens, Raynauds, Paresthetic Neuralgia, Occipital Neuralgia, Hashimotos, Thoracic Outlet Syndrome, and Multiple Sclerosis! PHEW! I was honestly exhausted and beaten […]
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Posted by:
The Sumaira Foundation
in Patient.e, TM, Voices of NMO
My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year of pursuing an MBA (Masters of Business Administration) at Pioneer Institute of Professional Studies (PIPS) in Indore when it all happened. In August 2010, I […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Recently, Ria’s mother’s blood pressure climbed dangerously high. Her father is scheduled for a triple bypass later this week. It’s been an unusual few months for a woman who has been on the other side of the hospital bed more frequently than not for the last five years. Ria has risen to the occasion. Because […]
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