Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a second child. After the birth, though, she was put on Rituximab for the lymphoma, once a week for four weeks. Two years later, one night […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
This disease began with hiccups and vomiting 25+ times a day. I was certain that I had gotten food poisoning or had the flu. Later, I learned that things would get much worse before they got better. I could no longer work because it was difficult for me to even get out of bed. After […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation for NMO and Miss Bangladesh-USA 2015. Thank you for taking the time to read my story. It all started in June 2014. I was a perfectly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Here is my story of how I was diagnosed with Neuromyelitis Optica and just how scary it can be knowing that something is wrong but not being able to find out what that something is. I am not one to share my emotions. The last 15 months have harbored some of the scariest times of […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
My name is Tracey Cho. I am a neurologist and a teacher. I specialize in autoimmune and infectious neurology, treating diseases like NMO, NMDA receptor encephalitis, HSV encephalitis, chronic meningitis, and neurosarcoidosis. I have also been a clerkship director (teaching medical students neurology) and residency director (mentoring neurologists in training). I have spent most of […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
Paula is a walking miracle. She looks good, feels good and can do most everything she ever did in her life, though she is now eligible for senior discounts. Paula has NMO. Lupus. Hashimoto’s Disease. Sjogren’s Syndrome. Raynaud’s Syndrome. Postural Orthostatic Tachycardia Syndrome (POTS). Fibromyalgia. When she was just 15, Paula was diagnosed with Idiopathic thrombocytopenic […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Meet the happy workaholic, Kelly Ann, an ambitious business + LinkedIn coach, podcaster and luxury brand consultant from California who candidly shares the ups and downs of her NMO story and the importance of dedicating your time and energy towards saving your own life. To learn more about Kelly Ann, visit www.kellyanngorman.com
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Julie has had NMO for at least a dozen years. From before and since that time, she has been diagnosed with a number of other conditions. She has been knocked down, again and again, and has always picked herself back up. She is one strong woman. As a mother and grandmother, Julie knows that […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica on July 25, 2015. My story is a little different than many of the stories I’ve heard or read about because my symptoms started only 11 days earlier. I had a fever and began to have pain in my hands. Over the course of the next few days, my […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
In October 2015, as I was traveling to Oklahoma to visit my sister, I developed a deep gray-teardrop-shaped spot in my right eye which increased after I arrived. I mentioned this to my sister as it was odd I could see around this shape. There was a little soreness and my eye was slightly itchy. […]
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