Posted by: The Sumaira Foundation in Nouvelles et annonces
Après deux années bien remplies à défendre des projets pour les Patients et les Aidants en France, nous voulions aider à un niveau européen. Nous avons donc choisi de rejoindre EURORDIS. EURORDIS – Maladies rares Europe est une alliance unique, à but non lucratif, regroupant plus de 1 000 associations de patients atteints de maladies rares […]
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Les 23 et 24 novembre 2024, The Sumaira Foundation France a tenu son deuxième week-end patients et aidants à Paris. Cet événement était en collaboration avec MIRCEM. Durant ces deux journées, ils ont pu échanger entre eux et avec des spécialistes de ces maladies pour faire la lumière sur ces deux maladies rares, NMOSD et MOGAD. […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
15 juillet 2024 — The Sumaira Foundation (TSF) France est ravie d’annoncer le lancement de son site internet www.sumairafoundation.fr Fidèle à sa vocation de soutien aux Patients et leur famille par des Patients, vous pourrez retrouver sur ce site: Pour Bérengère, Secrétaire générale de TSF France, « l’important c’était ce que je n’avais pas eu […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
June 14, 2023 — The Sumaira Foundation (TSF), a global patient advocacy organization focused on rare neuroimmune conditions, is delighted to announce Tim Walbert, chairman, president and chief executive officer of Horizon Therapeutics, as TSF’s Inaugural Global Rare Trailblazer Award recipient. The award was announced at the 6th Annual TSF Gala, recently held in Boston […]
Read MorePosted by: The Sumaira Foundation in Media & Press, Nouvelles et annonces
“You have to grab life by the horns and enjoy every moment. Even if you’re not ill, you should do that!” April 7, 2023 — The Sumaira Foundation’s (TSF) first original short film NMO, Bonjour! has been selected into the official final shortlist at the World Health Organization’s 4th Health for All Film Festival, 2023. […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
28 février 2023 – The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO et la MOGAD. La Fondation Sumaira (TSF), organisation mondiale à but non lucratif dirigée par des Patients, est heureuse d’annoncer son essor en Europe avec […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOG-AD) In 2014, The Sumaira Foundation (TSF) launched to raise awareness of neuromyelitis optica spectrum disorder (NMOSD) and create a community of people brought together through shared experiences. As our network of patients, caregivers and supporters grew, the science was evolving. Researchers found patients who exhibited the same signs and […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
March 10, 2022 – The Sumaira Foundation (TSF) is pleased to announce the launch of “Imagine My Life With NMO,” a video series showcasing the experiences of people living with neuromyelitis optica (NMO) around the world. The series follows Sumaira Ahmed, TSF founder, as she interviews patients, their loved ones and doctors to understand the […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
November 22, 2021 – The Sumaira Foundation is pleased to welcome Professor Romain Marignier as the 1st international NMO specialist to join TSF’s medical advisory board. Romain Marignier, MD Pr. Romain Marignier is a neurologist (MD), professor at the Neurological Hospital of Lyon, France. His areas of expertise include neuro-inflammatory disorders of the central nervous […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
Let’s celebrate! March is NMO Awareness Month and we’re proud to share all of the ways you can get involved and help illuminate the darkness of neuromyelitis optica Join the Campaign Our #IYKYK NMO campaign will last all month long! Be part of the campaign by downloading and sharing our custom media assets on your social […]
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